When older adults come to the emergency department (ED), care teams may struggle to capture what matters most to them. The ED environment is fast-paced, and care is often protocol driven, which can make it hard to engage patients in communication about their priorities and clinical decision-making. In the United States, the Centers for Medicare & Medicaid Services (CMS) recently developed an age-friendly hospital measure that requires eliciting patientsâ healthcare goals in hospital care. There are many questions that need to be answered: who should do this? How? With whom? In this post, we want to outline some simple considerations for clinicians about asking patients about their healthcare goals.
From âGoalsâ to âWorriesâ and âExpectationsâ
In practice, the language we use matters. Many patients and caregivers do not naturally think about their ED visit in terms of goals. In research and quality improvement, when we have directly asked ED patients about the goal of their visit or the outcome theyâre hoping for from the visit, the question has often fallen flat. Instead, asking about their âbiggest worryâ or âwhat they expected would happen todayâ opens the door to meaningful conversation. These simple prompts are often more intuitive for patients and can reveal priorities that shape both communication and care.
In clinical practice and research, we have found that ED patients generally fall into a few buckets of expectations:
- Seeking symptom control (âI just need the pain to stop.â)
- Hoping for a specific diagnosis (âI want to know whatâs causing this cough.â)
- Looking for reassurance about a feared condition (âI want to make sure itâs not my heart.â)
- Needing help with care coordination (âI canât get an appointment with my pulmonologist and I didnât want to wait four months.â)
- Following a referral (âMy cardiologist sent me in,â âMy wife made me come inâ)
A quick, well-phrased questionâsuch as âWhat was your biggest worry coming in today?â or âWhat was your biggest worry about your health today?ââcan help clinicians identify the bucket a patient falls into. That insight may not always change medical decision-making, but it can transform the patientâs experience and the clarity of communication.
When knowing patient goals is most helpful
Understanding patient goals or expectations isnât equally actionable in every situation. Based on feedback weâve obtained from emergency clinicians, there are three situations where itâs most useful to elicit healthcare goals:
- When a patient has serious/critical illness (i.e., decisions have to be made about resuscitation, intubation, and intensive care)
- When there is clinical equipoise around the disposition â and care teams are making decisions about whether an older adult should be admitted or discharged
- When a patient has a chief complaint or presentation for a concern that doesnât result in a fairly standard, protocolized approach to their care (e.g., weakness/fatigueâa varied approach vs. chest painâa protocolized approach)
Bringing Structure to âWhat Mattersâ
Below is a series of questions that can be adapted for your hospital team as an interview guide for eliciting patientsâ goals, i.e., their expectations of ED care. You can download a PDF copy here.
These questions were tested with emergency department patients and are phrased for clarity. The questions are intended to be used by clinicians, social workers, volunteers, or other ancillary personnel.
As noted in the PDF, some of these questions have been adapted from the Patient Priorities Care framework â see patientprioritiescare.org.
Importantly, a patientâs goals and expectations become more meaningful when understood in contextâtheir caregiving situation, social supports, and functional status. These dimensions influence how clinicians can act on what they learn. Thatâs why the above materials contain a nod to these domains.
Ultimately, eliciting what matters most is not just about compliance with CMSâitâs about connection. Asking older adults about their expectations of the visit can shape the ED encounter into an interaction that honors patientsâ priorities and autonomy, even in moments of crisis.
Interviewers Guide
PRIMARY CONCERN
When you came into the ED today, what was your biggest worry about your health?
GOAL OF ED VISIT
What are you most hoping will happen from this ED visit? (Figuring out what’s going on/diagnosis, controlling symptoms, getting back to routine, getting reassurance, coordinating care, completing a referral?)
CAREGIVING SUPPORT
While you recover, you might need help with day-to-day activities. Are there people who live with you? Are there people who could come to help you with this? (With things like medications, helping you around your home, monitoring and making sure you’re feeling okay, or just checking in on you?)
- [ ] Lives alone
- [ ] Lives with others: (roommates vs. family members) _______________
Specific things that family, friends, home health, community could help with: __________
(check-in/monitoring for worsening symptoms, meal preparation, medication pick-up, getting to bathroom to toilet/bathe, transferring from chair/bed, transportation to a medical appointment).
OUTPATIENT FOLLOW UP
Do you have a doctor you see regularly? [ ] Yes [ ] No
Type of doctor, if specified: __________
If yes, how easy or hard would it be to follow up with your doctor within the week?
Age-Friendly Assessment
PRIMARY CONCERN
When you came into the ED today, what was your biggest worry about your health?
GOAL OF ED VISIT
What are you most hoping will happen from this ED visit?
PREFERNECES ABOUT HOSPITAL ADMISSION
Let’s say that today, we find we can either treat you here in the hospital or at home with follow-up. What would you prefer? (Why?)
CAREGIVING SUPPORT
While you recover, you might need help with day-to-day activities. Are there people who live with you? Are there people who could come to help you with this? (With things like medications, helping you around your home, monitoring and making sure you’re feeling okay, or just checking in on you?)
- [ ] Lives alone
- [ ] Lives with others: (roommates vs. family members) _______________
Specific things that family, friends, home health, community could help with (note to interviewer, delete any categories that don’t apply):
- [ ] check-in/monitoring for worsening symptoms
- [ ] meal preparation
- [ ] medication pick-up
- [ ] getting to bathroom to toilet/bathe
- [ ] transferring from chair/bed
- [ ] transportation to a medical appointment vs. patient drives on their own
- [ ] other
OUTPATIENT FOLLOW UP
Do you have a doctor you see regularly? [ ] Yes [ ] No
Type of doctor, if specified: __________
If yes, how easy or hard would it be to follow up with your doctor within the week?
